Friday, 1 July 2016

Milestones . . .

When you think of milestones in life, I had never imaged factoring in one of those being getting through HSCT treatment in a Russian hospital. But here I sit in my hospital room on the other side of the world and feel that this is one of the best milestones I have to concur!

Over the past couple of days I have had a number of tests and I was given the fantastic news today by Dr Fedorenko that I had the all clear to start treatment. I will be posting on my FaceBook page my day to day treatment. My FaceBook name is Megan Rundback HopeLoveLive and my page is ‘Hope Love Live - HSCT - A mother's mission to halt her MS’. Please join if you would like to follow my story more closely.

I have already seen some remarkable improvements with some other people that are nearing the end of their treatment. A common question is “What do you feel has improved so far?”

To help me answer this question post treatment and be able to benchmark my symptoms, I thought I would share the list below to see after following treatment do any of my symptoms improve. Please note that the HSCT treatment is designed to halt MS and any improvements are a bonus. 

Symptoms June 2016
  • My legs are very sore and painful
  • I can not walk or stand for any length of time
  • Constant headaches
  • Bladder urgency issues
  • Constant sore throat and feel like there is lump in my throat
  • At night my legs need to move – like restless leg syndrome
  • Heat intolerance
  • Fatigue
  • Itchy legs and a feeling as if bugs are crawling all over you

How am I feeling the night before treatment?
I just know this is something that I have to do if I am going to have any quality of life for the future. I usually go into auto pilot mode and have an attitude of ‘let’s just do it’! So that’s the attitude I am trying to have . . . I am a little nervous, but all the messages of support and the simple hellos are really helping me through x

Hope. Love. Live.

Megan x